Gavin Drew
We first found out about Gavin’s condition at the same time we found out we were having a boy. Because I elected to take additional testing to make sure he did not have anything such as Down Syndrome, the technicians who were doing the sonograms were able to see something with his heart and wanted to send us to the Cardiologist at Wolfson Children’s Hospital. It was during that time when we met Dr. Lacey, who confirmed the issue was Aortic Valve Stenosis.
We were told he would be okay while he was still in the womb, but Gavin decided he wanted out and was born at almost 28 weeks. At just 2.6Ibs, he was so tiny and frail. His parents thank the staff and doctors at Wolfson Children’s Hospital that Gavin has grown to be a healthy and happy little three year old boy, as healthy as he can be with his condition anyway.
Gavin will eventually have to have the valves in his heart replaced, and from birth he has had multiple procedures to help prolong the use of his bad valves. His family hopes he will be able to make it until he hits puberty before surgery, making it less likely he will have to have multiple valve replacement surgeries.
Gavin continues to defy the odds, and you would never know there was anything wrong with him. His parents thank God everyday for the wonderful staff and doctors at Wolfson Children’s Hospital, without their knowledge and support this would be much more difficult to handle.
